Julie Grimstad commented on IF I HAD TO CHOSE BETWEEN HOSPICE CARE AND PALLIATIVE CARE, I WOULD CHOSE HOSPICE CARE
Response: Fr. Angelo is well-intentioned and desirous of helping others make good end-of-life choices that are consistent with the Church’s teaching on human dignity, Christian autonomy and the principle of elective extraordinary means. However, his post is misleading and potentially harmful to those individuals he intends to help.
Both hospice care and palliative care can be and are sometimes inappropriately and unethically used to hasten patients’ deaths. The June 2013 issue of “Ethics and Medics” contains an essay written by colleagues and myself which is a summary description of stealth euthanasia. Stealth euthanasia is any process by which death is hastened in a clandestine manner.
Let’s consider current hospice care in the United States. Some hospices and health care professionals—knowingly or not—participate in stealth euthanasia. Practices include standard orders for the use of opioids (morphine) for all patients once enrolled in hospice, even if they are not suffering symptoms which opioids treat, e.g. pain and shortness of breath. At times, inappropriate dosages are used – dosages well beyond those necessary to control symptoms, causing the patient to die more quickly than would occur naturally. This is either due to health care professionals’ willful intention—i.e. intending the patient’s death—or by their (unacceptable) ignorance concerning the proper use of these drugs which results in the patient’s death. Another practice that is employed to hasten death is sedation accompanied by withdrawal of food and fluids. The point is that not all hospices are authentically pro-life. One cannot assume that a particular hospice in our secular culture accepts the Christian/Catholic teaching of the sanctity of all innocent human life and, correlatively, of the intrinsic evil of euthanasia.
Regarding palliative care, Father Angelo accuses it, essentially, of practicing stealth euthanasia, as described above. Admittedly, there are abuses in palliative care as there are abuses in hospice care. This is all the more reason for vigilance in choosing those hospices and palliative care programs that are sensitive to and respect the value of life and the culture of life.
Father Angelo states, “‘Palliative Care’ pretends to relieve the burden of suffering that fate has placed on people’s shoulders.” This is a gross caricature of basic palliative care. Palliative care was defined by the Center to Advance Palliative Care in 2011 as “specialized medical care for people with serious illness. This type of care is focused on providing patients with relief from the symptoms, pain, and stress of a serious illness – whatever the diagnosis. The goal is to improve quality of life for both the patient and the family. Palliative care … is appropriate at any age and at any stage in serious illness, and can be provided together with curative treatment.” Additionally, palliative care is a new medical specialty that works hard to assess the patient in holistic terms using eight domains: medical, physical, social, psychological, spiritual, cultural, ethical and legal aspects of medical care.
It is a team-approach for care to ensure patient’s goals are met and their symptoms well-managed and, as defined, is concurrent with disease-specific “curative treatment.” A noteworthy landmark palliative care study by JS Temel (New England Journal of Medicine, August 2010) demonstrated that early palliative care in patients with non-small cell lung cancer who were also receiving standard chemotherapy (compared to patients who got only chemotherapy but did not receive palliative care) led to significant improvement in self-assessed quality of life and less depression. Also, these patients had less aggressive therapy at the end of life yet LIVED APPROXIMATELY 2 MONTHS LONGER. Authentic palliative care has the potential to improve overall survival and reduce patients’ suffering, i.e. improve what the patients assessed to be a better quality of life.
I’m not sure what kind of palliative care teams Father is referring to, but it is not genuine palliative care if there is a “strong agenda of pushing for a quicker death.” Sometimes there is a recognition that the disease is no longer curable and, in those cases, following patient’s wishes, withdrawal of therapies may occur. If this is done according to the Catholic Church’s long-standing teaching, using the principle of ordinary and extraordinary means to preserve life, the patient or surrogate may request the removal of extraordinary means. A comment about “quality of life” is also in order here. The judgment – explicitly stated or implicitly assumed – that someone may be better off dead is a judgment concerning the quality of life. Christians, however, recognize that life is pure gift and may never be qualified by any observer. No one may discard this gift as being somehow defective. Even the patient himself cannot morally decide to have his life ended because he considers his life not worth living.
There is a clear distinction between a quality of life judgment and a quality of treatment judgment. For example, (and the Church agrees with this) the person who happens to be the patient may determine the QUALITY of a particular treatment meant to preserve life. For example, the ventilator used in a patient with ALS may, at some point, become extraordinary. That is to say, when a particular treatment has become burdensome and beyond any proportional benefit to that person, he may decide to forgo that specific treatment. This is the case even if it is foreseen that his death will ensue. In this case, the patient—and the patient alone (or surrogate)—is determining that the quality of a particular treatment is of no benefit to him or is too burdensome for him to bear. Note that this is not someone determining life has little or no quality, but rather that a treatment to sustain life has inadequate quality. As such, the treatment may be stopped. The intention, then, of the person/patient is to stop a burdensome treatment; it is not an intention to die. There is a very big difference.
For both hospice and palliative care providers, there is no justification for making quality of life determinations about their patients’ lives. This is an encroachment upon a personal experience that for many Christians is also sacred.
In a culture of death, where the sanctity and dignity of life are seen as extrinsic qualities, it is not surprising to find a growing number of health care professionals (and patients too) who speak about and use quality of life arguments as a tool to intend death. It is only a culture of life that enables the recognition of life’s inherent dignity and holiness, as pure gift from its Creator. Life derives it value from God, and not from any government, society or “enlightened” group of people. As such, there is no entity or person who ever has a right to dispose of any innocent human life in the name of quality or compassion, and certainly not in the name of economics.
There is so much more that could be written. My primary purpose in addressing this misleading post is this: I do not want others to dismiss palliative care without hearing, from someone who practices it, what it really is and its potential benefits. In fairness to Father Angelo, his experience of palliative care that formed his opinion may have been one of “stealth euthanasia” which has been described above and ascribed to certain types of hospice care and palliative care. For our discussion, however, it is important to correct any misconception about the mission of authentic palliative care. I wrote this response for the benefit of patients who might otherwise miss an opportunity for genuine palliative care while they are still getting therapy for their disease. Refusal of palliative care, based on Father Angelo’s description of it, may result in greater suffering or needless suffering. Furthermore, considering Temel’s study, good palliative care has the potential to improve one’s chances of living longer.
Finally, if patients and their surrogates believe Father Angelo’s post, they may choose to enter hospice unaware of the risk of stealth euthanasia or what another important writer on this topic, Wesley Smith, calls “Forced Exit” (his book by the same title). I would advise people to investigate the practices of any hospice or palliative care program before enrolling in it in order to assess whether it adheres to a “quality of life” or a “sanctity of life” ethic.
Ralph A. Capone, MD, FACP Board Certified Hospice and Palliative Medicine Adjunct Faculty St Vincent College in Catholic Bioethics
More information about Julie Grimstad
IP: 188.8.131.52, 172-7-244-8.lightspeed.rcsntx.sbcglobal.net
Home hospice care is just as dangerous as other hospice care–the type of care received depends entirely upon the hospice one chooses. However, at least at home, hopefully, the patient will have caring family members with him at all times.
What can you and I do regarding the misinformation found everywhere that wrongly teaches ‘hydration and nutrition’ is artificial? It is up to all of us to educate ourselves and use our words and contacts to publicize the truth and expose the deceptive language used by the culture of death. Print out the important substantiating documents provided within this essay’s link:
Educate ourselves first and then distribute the documents to our bishops, pastors, family members, and friends. Educate and convince others to the saving truths of the Church’s clear teachings on ‘hydration and nutrition.’
Julie Grimstad has made a careful and respectful critique of the recent article by Father Angelo that I posted on this Blog. I am confident that he will make a careful and respectful response to the critique of Julie Grimstad.
In the meantime, I would like to offer this comment. One of the practical difficulties of following Julie Grimstad’s advice: “This is all the more reason for vigilance in choosing those hospices and palliative care programs that are sensitive to and respect the value of life and the culture of life” is that probably very few patients or their families choose the hospital in which the hospice or palliative care program would be offered.
I suspect that in the vast majority of cases it is the family physician who directs the patient to a hospital where the physician has admission privileges. In those cases it is unlikely that the patient or the patient’s family would have any advance knowledge of the quality of hospice care or palliative care offered by that hospital and once admitted it would be very difficult to effect a transfer of the patient to another facility.
That is why I suggest that home hospice care, where feasible, is the best choice.